The Australian Graphic Design Association (AGDA) handed out its 2014 awards as part of this year’s Australian Design Biennale in Hobart last weekend.
Read more online with the Sydney Morning Herald.
Recently Prosensa provided reports on their financial results for the third quarter ending September 30, 2014 as well as an update on the regulatory plans and re-dosing for drisapersen, our lead exon-skipping drug candidate, and next steps for our follow-on exon skipping compounds for the treatment of Duchenne muscular dystrophy (DMD). Read the article on Yahoo Finance News.
The much anticipated worldwide survey to better understand healthcare for people with Duchenne muscular dystrophy – has just gone live.
The Care-NMD survey will provide information about the current state of care for people with DMD all around Australia. This survey has already been completed in 19 countries.
If you are a parent/guardian, or a person affected with DMD, please take the time to fill in the anonymous survey. It should only take around 20-30 minutes of your time.
We will use the information from the surveys to help improve care where it is needed most.
To get started visit research.net/s/dmd2014survey
As we age, the cells responsible for helping to maintain, repair and build our muscle tissue are not exhausted. They are simply not being given the right instructions to carry out the work. Changing this communication problem could provide a way to treat muscular dystrophy.
Read more about this online at the conversation website.
Jerry Lewis has become an honorary member of the Order of Australia for his services supporting muscular dystrophy.
Read more about it online: https://au.news.yahoo.com/world/a/24855708/actor-jerry-lewis-made-honorary-member-of-the-order-of-australia-for-muscular-dystrophy-charity-work/
Not even muscular dystrophy could stop Cairns long-time Northern Pride supporter Steven Patrick from landing a job, but never in his wildest dreams did he imagine he’d nab this one.
With assistance from employment organisation Ostara Australia, he pleaded with his favourite club to take him on.
Read more online at: http://www.northernpride.com.au/stevens-pride-at-landing-dream-job-at-club/
JOHN Halford has taken part in the Dwellingup 100 for the past two years and this year gets the chance to ride for someone who can’t.
The Greenfields resident found out on Monday he will take on the 40-kilometre track for Dylan, a 17-year-old who suffers from Duchenne muscular dystrophy, and raise money for Muscular Dystrophy Western Australia in process.
Read more online: http://www.murraymail.com.au/story/2513659/mandurah-man-to-ride-the-dwellingup-100-for-someone-cant/?cs=12
On Saturday September 6, Collie resident Margaret Swan will join a group of forty dedicated mountain bikers and blaze the trails of Dwellingup in an inspiring race to beat muscular dystrophy.
Read more online at: http://www.colliemail.com.au/story/2510854/race-to-beat-muscular-dystrophy/?cs=12
Families affected by Duchenne MD are invited to participate in a survey being conducted by the Uni of WA, looking into healthcare utilisation and costs of DMD in Australia.
UWA are looking for families with a child diagnosed with Duchenne to participate by completing an online survey questionnaire. Your input will help build an understanding of the economic impact of DMD on families and the health system, with the aim to inform policy change and improve access to emerging DMD therapies in Australia.
The survey will take aprox 15-20 minutes of your time. Those who do complete it will be entered into a lucky draw for a brand new iPad mini.
The survey is available online, alternatively you can request a paper copy by emailing Lucie Teoh.
For many years, muscular dystrophy associations across Australia have known the benefits cough assist machines can offer our clients.
For many people with muscular dystrophy, the deterioration of the chest muscles makes it difficult, if not impossible, to cough. Phillips’ CoughAssist machines remove congestion on the lungs, mechanically stimulating a cough by directing a full breath deep into the lungs followed by a rapid exhale. This versatile, non invasive treatment prevents the development of lung infections and further respiratory complications.
Recently, we received feedback from a South Australian family who, through funding from their local MD association, were fortunate to have a CoughAssist machine in their home.
Mum said, “In Jay’s younger childhood years, he used to struggle with respiratory illness which would result in at least two hospital admissions per year sometimes requiring up to a week’s stay in hospital with oxygen.
After his last admission, we were provided with a cough assist machine to take home with us and we haven’t looked back since. Having this machine at home means we are able to use as a preventative measure to keep Jay’s lungs healthy and also catch a cough at the onset so it doesn’t develop into something more serious. That was 2 years ago now and I don’t think we have even had to go to the GP! Jay’s health has improved greatly and he got a fantastic report from the Respiratory specialist just last week.
We were advised that this machine was donated by MDA and once again we are extremely grateful to this amazing organisation. Thanks MDA SA!!”
Are you able to help provide this life-changing equipment for a local family. Please donate to support this worthy program.