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Archives for the "News Features" Category

It’s finally here

Last modified on 13 Oct 2014 7:59 am

The much anticipated worldwide survey to better understand healthcare for people with Duchenne muscular dystrophy – has just gone live.

The Care-NMD survey will provide information about the current state of care for people with DMD all around Australia. This survey has already been completed in 19 countries.

UWA seeks DMD families for survey

Last modified on 19 May 2014 7:31 am

UWA are looking for families with a child diagnosed with Duchenne to participate by completing an online survey questionnaire, regarding the economic impact of DMD on families and the health system, with the aim to inform policy change and improve access to emerging DMD therapies in Australia.

The Race to Yes – we need you to sign

Last modified on 25 Mar 2014 2:05 am

A pending FDA decision could determine whether this generation of children is the last to die from Duchenne, or the first generation to live. We need your signature on the FDA petition.

Rare Disease Day

Last modified on 25 Mar 2014 2:07 am

We’re proud to support the Rare Night Out, to be held on Feb 28th.

CRE-NMD Annual Report 2012

Last modified on 16 Jan 2014 6:44 am

We are pleased to share this valuable information prepared by the Centre of Research Excellence in Neuromuscular Disorders (CRE-NMD) and the Australasian neuromuscular Network (ANN).

The Anchor Committee – Spring Soiree 2013

Last modified on 25 Mar 2014 2:06 am

The Anchor Committee recently hosted their inaugural Spring Soiree at Sydney’s Royal Motor Yacht Club, choosing to nominate the Muscular Dystrophy Foundation as their charity partner.

Little Heroes Care

Last modified on 23 Sep 2013 8:59 am

The Muscular Dystrophy Foundation and participating State based MD associations are delighted to have the ongoing support of the Little Heroes Foundation, which provides alternative pathways to meet the needs of children, young adults and their families.

Calling for an NDIS

Last modified on 23 Sep 2013 8:59 am

Muscular Dystrophy associations across Australian support the Every Australian Counts campaign, calling for the introduction of a National Disability Insurance Scheme (NDIS).

Standing Together To Make A Difference

Last modified on 23 Sep 2013 8:59 am

Neuromuscular conditions, including Muscular Dystrophy, are debilitating diseases that affect 1 in 1,000 people in Australia

National Electric Wheelchair Sports 2010

Last modified on 23 Sep 2013 8:59 am

N.E.W.S. has kicked off for 2010, featuring competition between teams from around Australia in hockey, soccer and rugby league.

PIPEd supports Muscular Dystrophy

Last modified on 23 Sep 2013 8:59 am

PIPEd General Manager Mike Lyle presented MDF Australia CEO David Jack with a cheque for $15,000, Tuesday 31 March 2009, Sydney.

Red Bow a symbol of support

Last modified on 23 Sep 2013 8:59 am

Brisbane workers braving the morning rush hour were warned they’d see red on Friday the 13th.

Solidarity March in SA

Last modified on 23 Sep 2013 8:59 am

Adelaide’s streets turned bright red when Muscular Dystrophy Association Inc (SA) conducted its inaugural Solidarity March.