News Features | MD Australia

It’s finally here

Last modified on 13 Oct 2014 7:59 am

The much anticipated worldwide survey to better understand healthcare for people with Duchenne muscular dystrophy – has just gone live.

The Care-NMD survey will provide information about the current state of care for people with DMD all around Australia. This survey has already been completed in 19 countries.

UWA seeks DMD families for survey

Last modified on 19 May 2014 7:31 am

UWA are looking for families with a child diagnosed with Duchenne to participate by completing an online survey questionnaire, regarding the economic impact of DMD on families and the health system, with the aim to inform policy change and improve access to emerging DMD therapies in Australia.

Raising the Bar – a whitepaper on achieving the best outcomes from the NDIS

Last modified on 25 Mar 2014 2:38 am

“We believe that the NDIS represents the best chance people with disability in Australia have ever had to get prepared to contribute to our society.” Read the complete whitepaper or share your stories with the authors.

The Race to Yes – we need you to sign

Last modified on 25 Mar 2014 2:05 am

A pending FDA decision could determine whether this generation of children is the last to die from Duchenne, or the first generation to live. We need your signature on the FDA petition.

Rare Disease Day

Last modified on 25 Mar 2014 2:07 am

We’re proud to support the Rare Night Out, to be held on Feb 28th.

CRE-NMD Annual Report 2012

Last modified on 16 Jan 2014 6:44 am

We are pleased to share this valuable information prepared by the Centre of Research Excellence in Neuromuscular Disorders (CRE-NMD) and the Australasian neuromuscular Network (ANN).

The Anchor Committee – Spring Soiree 2013

Last modified on 25 Mar 2014 2:06 am

The Anchor Committee recently hosted their inaugural Spring Soiree at Sydney’s Royal Motor Yacht Club, choosing to nominate the Muscular Dystrophy Foundation as their charity partner.