It’s finally here

The much anticipated worldwide survey to better understand healthcare for people with Duchenne muscular dystrophy – has just gone live.

The Care-NMD survey will provide information about the current state of care for people with DMD all around Australia. This survey has already been completed in 19 countries.

If you are a parent/guardian, or a person affected with DMD, please take the time to fill in the anonymous survey. It should only take around 20-30 minutes of your time.

We will use the information from the surveys to help improve care where it is needed most.

To get started visit