Archive for the 'Media Release' Category


Jerry Lewis accepts Little Heroes donation

01 Jul 2011 04:27pm

jerry-lewis-little-heroes-for-webLegendary comedian and humanitarian Jerry Lewis accepted a donation of $600,000

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Jerry Lewis Update Saturday 25 June 2011

25 Jun 2011 02:45pm

Legendary US comedian Jerry Lewis was resting in his Sydney hotel today after cancelling a sold-out show at Rooty Hill RSL last night due to exhaustion.

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Standing Together To Make A Difference

17 May 2011 11:59am

Stand Tall Ball

Neuromuscular conditions, including Muscular Dystrophy, are debilitating diseases that affect 1 in 1,000 people in Australia Read More

Tour Duchenne 2011 - Event Information

13 May 2011 05:00am

img_0241 Tour Duchenne rides again in September with a three day ride from Sydney to Canberra from 12 – 14 September.  Read More

Dr Josh Burns’ Tour Duchenne Blog - Day 10

17 Mar 2009 06:26pm

Dear donors, colleagues, friends and family,

Last day of the Tour Duchenne from Phillip Island (Cowes) to Melbourne.

Exciting, entertaining and emotional.

We were all really looking forward to this day, the final day of an epic adventure. 25 sensitive and sore cyclists saddled up for the ‘easy’ 95Km ride with showers clearing, sunshine peeking, and finally a tail wind as we headed north for home riding on adrenalin and reflecting on a tough tour, a massive fundraising campaign, and heightened awareness of muscular dystrophy.

As we rolled up Flemington Rd to the Royal Children’s Hospital, the fathers of the boys with MD took the front and crossed the finish line with the wonderful cheers of many families and friends.

Thank you all for your support, donations and enthusiasm. We all achieved something special over the past 10 days.

Day 10 Statistics:

Temperature: 22, showers clearly to sunshine

Falls: 2 (1 flip and 1 jack knife - both ok, except ego)

Flat tyres: 4

Distance: 95km

Average: 24 km/h

Road kill: 1 (fox)

Player comfort (0 awful to 10 delightful): 10

Saddle sore index: Manageable with the end in sight!

Kind regards

Dr Joshua Burns
Institute for Neuromuscular Research
The Children’s Hospital at Westmead
Donate: www.tourduchenne.com
Photos: Day 10

Dr Josh Burns’ Tour Duchenne Blog - Day 9

17 Mar 2009 06:23pm

Dear donors, colleagues, friends and family,

The day we will never forget.

The most difficult day of cycling for each and everyone of us. Even the ladies said it was worse than child birth!

From Yarram to Phillip Island looked challenging but nothing like yesterday. We rolled out under dark clouds and a very stiff head wind at 7am. The head wind strengthened to 50-60km/hour and stayed with us for 7 hours (some for 9 hours) to cover the 155km. Rain started at 40km and pierced our faces as we battled to stay upright along the Bass Straight coastline. Everyone was hurting, everyone was getting flat tyres and everyone was freezing.

But who’s complaining…we’re almost home.

Day 9 Statistics:

Temperature: 16, gusting winds and rain and hail

Falls: 6 (minor)

Flat tyres: 14

Distance: 155km

Average: 22 km/h

Road kill: 10 (4 kangaroo, 1 koala, 5 other……)

Player comfort (0 awful to 10 delightful): 0.1

Saddle sore index: Unfairly high

Dr Joshua Burns
Institute for Neuromuscular Research
The Children’s Hospital at Westmead
Donate: www.tourduchenne.com
Photos: Day 9

Walk for MD, Manly Beach

17 Mar 2009 02:30pm

Manly Beach

Manly Beach

Take a walk along the Esplanade at Sydney’s famous Manly Beach and help raise funds for research into Duchenne Muscular Dystrophy. Read More

Tour Duchenne a Success

11 Mar 2009 09:42pm

tour-duchenne2

Dr Josh Burns, researcher at INMR (The Children’s Hospital Westmead) is riding the Tour Duchenne. Read More

Tour Duchenne Kicks Off!

25 Feb 2009 01:03pm

tour-duchenne2A wonderful night at the Cargo Bar in Darling Harbour launched the Tour Duchenne. Event organiser Julian Thompson and hundreds of family and friends celebrated over $600,000 committed so far to supporting the INMR (Institute of Neuromuscular Research) in Sydney and NMDRC (National Muscular Dystrophy Research Centre) in Melbourne research a cure for muscular dystrophy. 25 cyclists, including Tom Williams and Julian will ride from Sydney to Melbourne, leaving The Children’s Hospital Westmead on Saturday morning (7 March) accompanied by the NSW Premier and Federal Member Tony Abbott.  MDF wishes the riders a safe and successful trip.

Domestic Blitz for Bucco Family

19 Feb 2009 12:50pm

Caption

Anthony & Jenny Bucco with MDNSW Staff

Don’t miss Domestic Blitz on Sunday night, 8 March at 6.30pm. Anthony and Jenny Bucco and their family (members of Muscular Dystrophy NSW) were given a makeover by Domestic Blitz . Tune in for their story.