Fact Sheets

The fact sheets can be used as a basis training and education tool for people who are newly diagnosed, living with a neuromuscular condition or their families and carers.  The sheets can also be used by others involved in their lives such as NDIS Local Area Coordinators, NDIA planners, therapists, service providers and support workers.

You will find these fact sheets useful in the NDIS planning process and can include a copy of the fact sheet with your planning information.

Becker Muscular Dystrophy (BMD)

Charcot-Marie-Tooth Disease (CMT)

  • also known as Hereditary & Motor Sensory Neuropathy (HMSN)
  • and also as Peroneal Muscular Atrophy

Congenital Myopathies

Include but not limited to:

  • Nemaline Myopathy
  • Central Core Myopathy
  • Minimulticore Myopathy
  • Centronuclear Myopathy
  • Congential Fibre Thy Disproportion Myopathy
  • Myotonia Congenita
  • Paramyotnia Congenita

Congenital Muscular Dystrophy (CMD)

Duchenne Muscular Dystrophy (DMD)

Facioscapulohumeral Muscular Dystrophy (FSHD)

Friedreich’s Ataxia (FA)

Idiopathic Infammatory Myopathies

Inclusion-Body Myositis

Limb-Girdle Muscular Dystrophy

Myotonic Muscular Dystrophy

Spinal Muscular Atrophies: