About Muscular Dystrophy Foundation Australia

Who we are

Muscular Dystrophy Foundation Australia (MDF) is the national peak body representing the interests of more than 40,000 Australians living with muscular dystrophy, and similar, rare conditions. Muscular Dystrophy (MD) is an ‘umbrella’ term that refers to a group of rare, complex, genetic conditions within a wider group of more than 75 conditions collectively referred to as neuromuscular conditions (NMCs). NMCs cause progressive deterioration of muscle strength and function and commonly result in profound disability.

MDF is committed to advocating on behalf of our community to influence improved health, social and economic outcomes. Our members are state and territory-based organisations which provide specialised support and services for their neuromuscular communities. This includes professional services as registered NDIS providers.

Our objectives

Our strategic plan for 2021 – 2024 includes four key objectives:

National Voice Advocate as the national voice.
Collaboration Facilitate collaboration and industry leadership.
Strategic National Initiatives Explore and lead strategic national initiatives.
Research Influence a national research agenda.

Our purpose

MDF is the national voice for Australia’s neuromuscular community. We facilitate collaboration between our state and territory members and lead national initiatives that make a significant difference to the neuromuscular community.

What we do

As the national peak body for people living with muscular dystrophy in Australia, we support our community by working closely with our member state and territory entities to provide information and digital networking opportunities as well as campaigning on important issues for the neuromuscular community.

Our goals

Our vision is Promise for tomorrow.

Our mission is Help for today and tomorrow