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Australia’s neuromuscular peak body strengthened by new Board appointments

The national voice and peak body for Australia’s neuromuscular community, Muscular Dystrophy Foundation Australia (MDFA), today announced the appointments of Ms. Carla Fairweather, Ms. Susan Kirby and Mr. Nick Smith to its Board of Directors. MDFA Chief Executive Officer, Ryan Talsma, welcomed the appointments and acknowledged the broad skills now represented at the Board level. […]

Muscular Dystrophy Foundation Australia Joins Alliance to Advocate for Accessible Product and Packaging Design

The Accessible Product Design Alliance, a group of 11 not-for-profit health consumer organisations, has released a joint position statement to highlight the struggle with inaccessible products and packaging experienced by their 5 million consumers living with chronic conditions and disability across Australia and New Zealand. The Alliance is focused on raising up their consumers’ voices […]

Muscular Dystrophy Foundation Australia lends its voice to call for Immediate Action To Vaccinate People With Disability Against COVID-19

11-Point Plan Proposed to Better Protect People with Disability Muscular Dystrophy Foundation Australia has joined an alliance of disability representative organisations calling on Australia’s governments to better prioritise people with disability in their vaccine rollout programs. On the first full day of a Canberra lockdown, the coalition of more than 60 disability organisations has released […]

‘COVID-19 and its impact on people with neuromuscular conditions’ Survey Report

In July 2020, a three-week survey was conducted to identify the impact of COVID-19 on people with neuromuscular conditions, their families and carers. The survey was conducted by Muscular Dystrophy Foundation Australia, in conjunction with survey partners Muscular Dystrophy Western Australia, Muscular Dystrophy Tasmania, Muscular Dystrophy Queensland, Capital Region Muscular Dystrophy, Muscular Dystrophy New South […]

MDFA partners with Meerkats to develop Neuromuscular Digital Resource

Muscular Dystrophy Foundation Ltd (MDF) has partnered with Meerkats The Brand Leadership Company Pty Ltd (Meerkats) to develop the Neuromuscular Digital Resource – an online, integrated and accessible resource to strengthen the capacity and skills of Australians living with muscular dystrophy and neuromuscular conditions, their families and carers. The Resource, which has been funded through a National Disability […]

MDFA announces Neuromuscular Digital Resource Project

The Muscular Dystrophy Foundation Australia (MDFA) recently received an NDIA grant for the development of an online, integrated and accessible resource to strengthen the capacity and skills of Australians living with muscular dystrophy and neuromuscular conditions, their families and carers. The Neuromuscular Digital Resource will essentially be a ‘one stop shop’ for Australians living with a neuromuscular condition, […]