Archives for the "Latest Press" Category
Last modified on 8 Aug 2019 1:12 pm
On Monday 1 July 2019, a diverse and passionate group of stakeholders came together at the Mercure Sydney to collaborate on the vision for the Neuromuscular Digital Resource.
Last modified on 4 Apr 2019 3:12 pm
The online survey to capture community input into our Neuromuscular Digital Resource is now open! The Muscular Dystrophy Foundation invites all members of the neuromuscular community – those individuals living with a neuromuscular condition, their friends, family and carers – to participate in this survey. This is your opportunity to have your say […]
Last modified on 26 Mar 2019 4:37 am
The Muscular Dystrophy Foundation, through funding from the Commonwealth, is developing a digital resource for the neuromuscular community. This will be an integrated, accessible and multi-language support system.
Last modified on 27 Sep 2015 11:39 pm
Researchers have successfully isolated human muscle stem cells and shown that the cells could robustly replicate and repair damaged muscles when grafted onto an injured site.
Last modified on 23 Sep 2015 6:08 am
A Practice Brief focusing on foot care for people with Charcot-Marie-Tooth disease (CMT) is now available.
Last modified on 23 Sep 2015 6:05 am
Australian boys with Duchenne muscular dystrophy (DMD) stand to improve their quality of life if a breakthrough drug gets approved.
Last modified on 23 Nov 2014 11:14 am
The Australian Graphic Design Association (AGDA) handed out its 2014 awards as part of this year’s Australian Design Biennale in Hobart last weekend.
Last modified on 19 Nov 2014 12:12 am
Recently Prosensa provided reports on their financial results for the third quarter ending September 30, 2014 as well as an update on the regulatory plans and re-dosing for drisapersen, our lead exon-skipping drug candidate, and next steps for our follow-on exon skipping compounds for the treatment of Duchenne muscular dystrophy (DMD).
Last modified on 13 Oct 2014 6:16 am
As we age, the cells responsible for helping to maintain, repair and build our muscle tissue are not exhausted. They are simply not being given the right instructions to carry out the work. Changing this communication problem could provide a way to treat muscular dystrophy.
Last modified on 31 Aug 2014 6:49 am
Jerry Lewis has become an honorary member of the Order of Australia for his services supporting muscular dystrophy.
Last modified on 26 Aug 2014 5:14 am
On Saturday Sept 6, Collie resident Margaret Swan will join dedicated mountain bikers and blaze the trails of Dwellingup.
Last modified on 19 May 2014 7:31 am
UWA are looking for families with a child diagnosed with Duchenne to participate by completing an online survey questionnaire, regarding the economic impact of DMD on families and the health system, with the aim to inform policy change and improve access to emerging DMD therapies in Australia.
Last modified on 14 Apr 2014 3:52 am
For many years, muscular dystrophy associations across Australia have known the preventative benefits cough assist machines can offer our clients. One mum, talks about the benefits for her child.
Last modified on 25 Mar 2014 2:38 am
“We believe that the NDIS represents the best chance people with disability in Australia have ever had to get prepared to contribute to our society.” Read the complete whitepaper or share your stories with the authors.
Last modified on 25 Mar 2014 2:05 am
A pending FDA decision could determine whether this generation of children is the last to die from Duchenne, or the first generation to live. We need your signature on the FDA petition.
Last modified on 25 Mar 2014 1:54 am
As a business based on the belief of authentic thinking and empathetic living, Novacorr Healthcare – a supplier of adaptable equipment such as beds and chairs – is focused on improving standards of living for people living with muscular dystrophy.
Last modified on 16 Jan 2014 6:44 am
We are pleased to share this valuable information prepared by the Centre of Research Excellence in Neuromuscular Disorders (CRE-NMD) and the Australasian neuromuscular Network (ANN).